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Who We Are

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Our Mission

Empowering Epilepsy connects people with epilepsy to experts and peers for education, care, and friendship.  We anchor a caring community that empowers our members and their loved ones to better understand and manage their treatment plan throughout their epilepsy journey.

From Our Founder:

What CAN you do? Growing up while managing epilepsy due to a traumatic brain injury when I was 8 years old, I never had an answer for that. I was always told what I couldn't do, as I could possibly have a seizure. Any place I wanted to go, I had the chance of having a seizure in public which would cause embarrassment and isolation. It also affected me academically and professionally. Luckily, when I was 22, I was able to have surgery and have been seizure free, so far, ever since. I am now an Epilepsy Survivor.

People with epilepsy don't talk about this chronic disease because of the ongoing stigma that accompanies seizures. When people lose control of their bodies, everyone gets nervous as to how to handle it. Our goal is to teach them.

 

Empowering Epilepsy is a nonprofit 501(c)3 public charity organization that focuses specifically on epilepsy education to assist people with epilepsy in all areas in which I felt left behind when living with uncontrolled seizures - Drug Resistant Epilepsy. We want to help people with epilepsy learn how to better manage their seizures, realize they are not alone when living with epilepsy, and take back control of their life. We walk with you throughout your epilepsy journey, providing proactive strategies to better manage your seizures, connecting you with top epilepsy specialists throughout the country, and teaching you how to give doctors the data they specifically need to give you or your loved one a more accurate diagnosis and treatment plan sooner. 


If you know someone who experiences epilepsy and seizures, please tell them about Empowering Epilepsy. We believe creating relationships with people who personally understand your experiences is key to empowering your life. Join our community and help us show people what they can do while living with this debilitating, chronic disease.​

Why join Empowering Epilepsy

Why Empowering Epilepsy

Despite the fact that 1 in 26 people will eventually be diagnosed with epilepsy at some point in their lifetime - the vast majority of those with epilepsy feel isolated and alone.  They have never met or talked with anyone else who also experiences epilepsy, and they find few resources and help outside of their neurologist’s office.

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Empowering Epilepsy was founded in 2014 by people with epilepsy, for people with epilepsy, to meet this dire need for learning, emotional, and disease management support. 

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We strive to help people with epilepsy find proactive ways to lessen their seizures, meet others who are also living with epilepsy, listen and speak with experts, and discover resources and opportunities to empower their lives. Our ultimate goal is to anchor a global community of support and learning for our members and their loved ones.
 

Empowering Epilepsy Events

Subscribe to Our Newsletter

Sign up to receive news and announcements on upcoming Empowering Epilepsy events, programs, and organization announcements.  

Our Vision


Our Programs

To enable people with epilepsy to take charge of their lives.

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Our programs include free or low cost conferences, epilepsy education and lifestyle guidance sessions with peers and expert interactions, age based support groups, and community building events.  We collaborate with epilepsy and other medical professionals from Level 3 and 4 Epilepsy Centers around the United States, as well as dietitians, social workers, and other specialists who can offer further lifestyle support services.

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Finally, we collaborate with, and educate community organizations about how to better identify and serve the needs of people living with epilepsy.

Our headquarters in Cleveland, Ohio hosts a variety of in-person events for both locals and visitors.  However, most of our offerings are offered online for participants around the country and the world. A sample of events includes:

Bowling, Pottery Painting, Yoga, and other family friendly events to build community 

 

Donate to Help Us
Change the Conversation About Epilepsy!

Here are some ways you can donate:

In Person

Empowering Epilepsy Headquarters

23500 Mercantile Road, Suite D
Beachwood, OH 44122

Online

Make a tax deductible donation‏.

Over the Phone

It's easy to donate offline too.

Tel: 216-342-4167

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