Preparing for Your Neurologist Appointment

Doctor Checking a Form

How much information should you share?

People who are new to epilepsy often are unsure what to do when they meet with their neurologist. How much information should you share? Are new things that you are noticing related to your seizures? Should you tell the doctor about it?

The answer is a profound yes!!!

You need to provide as much information to your doctor as possible so s/he can more effectively make an appropriate diagnosis regarding your experiences. Whether it be something that other people can see, or feelings that are different, but subtle – or that don’t seem to be very important, you need to share it with your doctor.

What your neurologist or epileptologist is looking for are clues to your seizures. They are trying to determine what happens when you have a seizure? How long does it last? What happens before or after you have a seizure and more. All these clues provide a better picture of what is happening in your brain, and if you are experiencing seizures/epilepsy, or if it something else.

Here is a to do list for you and your family to do before visiting the neurologist or epileptologist – whether it’s your first time, or simply an update to check your medication levels.

What questions should I ask my Neurologist / Epileptologist

Preparing a list of questions will help you make the most of your time with your doctor. List your questions from most important to least important in case time runs out. For epilepsy, some basic questions to ask your doctor include:

  • What is likely causing my seizures?

  • What kinds of tests do | need?

  • Is my epilepsy likely temporary or chronic?

  • What is the best course of action?

  • What are the alternatives to the primary approach that you're suggesting?

  • How can | ensure that | don't hurt myself if | have another seizure?

  • | have these other health conditions. How can | best manage them together?

  • Are there any restrictions that | need to follow?

  • Should | see a specialist? What will that cost, and will my insurance cover it?

  • Is there a generic alternative to the medicine you're prescribing?

  • Are there any brochures or other printed material that | can take home with me? What websites do you recommend?

  • Other questions | want to ask:

  • In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.


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